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Canadian Paediatric Surveillance Program
Criteria for Inclusion of New Studies
| Rarity |
Disorders of such low incidence or prevalence that national ascertainment of cases is needed (less than 1,000 cases a year) |
| Public health importance |
Clearly addressing a public or paediatric health issue |
| Scientific importance |
Demonstrated scientific interest and importance |
| Uniqueness |
Proposal must demonstrate a clear need for data on a condition or disorder for which there is only limited information and for which surveillance is the most appropriate means of collecting the data |
| Quality of proposal |
Proposal must state clear and achievable objectives, practicability, patient confidentiality, adequate resources, clear questionnaire and method of evaluation |
| Workload of paediatricians |
Steering Committee must be convinced that reporting will not make excessive additional demands on the workload of paediatricians |
Priority will be given to diseases that are not currently notifiable or, if notifiable, have sufficient indication of undernotification. Investigators are expected to demonstrate that potential funding is available.
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