Canadian Paediatric Surveillance Program
Participation
The CPSP studies relevant conditions of public health importance that are of such low incidence or prevalence that national ascertainment of cases is needed. To ensure national representation and that sufficient numbers of cases will be generated for meaningful results, more than 2,500 paediatricians, providing health care to over seven million Canadian children and youth, have been enrolled as CPSP participants. Paediatric subspecialists, such as neurologists, allergists, medical geneticists and intensivists, are enrolled in the program when research studies indicate their participation.
There are many important reasons why Canadian paediatricians, paediatric subspecialists and health-care providers actively participate in the Canadian Paediatric Surveillance Program (CPSP). Timely epidemiological prospective data collection has a direct impact on the diagnosis and treatment of patients. Surveillance of rare genetic conditions may identify populations at risk, which in turn, may lead to implementation of population-based screening programs. Such programs allow for intervention at younger ages, thereby improving quality of life. Data collection can monitor the incidence of disease before vaccination as well as the effectiveness of immunization programs.
Participation rate
- Initial reporting
The CPSP is getting closer to its ascertainment response rate goal of 90%.
- Detail reporting
The CPSP can lay claim to an impressive 96% response rate for detailed case reporting. This rate reflects the dedication of the paediatric community.
MOC credits through participation in the CPSP
The CPSP can help participants stay up-to-date on rare diseases, upgrade their medical knowledge and earn maintenance of certification credits through learning associated with various activities, such as reading a resource article and quiz, reporting a case for a condition under study and completing a detailed questionnaire.
For further information: cpsp@cps.ca
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