Surveillance

Canadian Paediatric Surveillance Program
Current and Concluded Studies

New studies as of April 1, 2012

• Fragile X syndrome  (case definition) (questionnaire)
• Obesity-hypoventilation syndrome (Pickwickian syndrome) in children (case definition) (questionnaire)

Current studies

• Acute flaccid paralysis (case definition) (questionnaire)
• Adverse drug reactions - Serious and life-threatening (case definition) (questionnaire)
• Conversion disorder in children and youth (case definition) (questionnaire)
• Early-onset major depressive disorder (case definition) (questionnaire)
• Early-onset neonatal sepsis and meningitis (case definition) (questionnaire)
• Intravenous fluid-related symptomatic acute hyponatremia (case definition) (questionnaire)
• Langerhans cell histiocytosis (case definition) (questionnaire)
• Neonatal hyperbilirubinemia - Severe (2011-2013) (case definition) (questionnaire)
• Periodic fever syndromes (case definition) (questionnaire)
• Respiratory syncytial virus (RSV) infections in paediatric transplant patients (case definition) (questionnaire)

Questionnaires can be completed and faxed to 613-526-3332 or mailed to 2305 St. Laurent Blvd., Ottawa ON  K1G 4J8. For assistance, contact the senior coordinator at 613-526-9397, ext. 239.

Concluded studies

• Acquired demyelinating syndromes of the central nervous system
• Acute rheumatic fever
• Adrenal suppression (case definition) (questionnaire)
• Anaphylaxis 
• Bulimic eating disorders (questionnaire)
• Cerebral edema in diabetic ketoacidosis
• CHARGE association/syndrome
• Congenital cytomegalovirus infection (questionnaire)
• Congenital myotonic dystrophy (case definition) (questionnaire)
• Congenital rubella syndrome
• Creutzfeldt-Jacob disease
• Early-onset eating disorders
• Group B strep
• Head injury secondary to suspected child maltreatment (abuse or neglect) (questionnaire)
• Hemolytic uremic syndrome
• Hemorrhagic disease of the newborn
• Hepatitis C virus infection
• Juvenile idiopathic arthritis (questionnaire)
• Kernicterus (questionnaire)
• Lap-belt syndrome
• Medium-chain acyl-coenzyme A dehydrogenase deficiency (questionnaire)
• Methicillin-resistant Staphylococcus aureus in hospitalized children (case definition) (questionnaire)
• Necrotizing fasciitis 
• Neonatal herpes simplex virus infection
• Neonatal hyperbilirubinemia - Severe (2002-2004)
• Neonatal liver failure/perinatal hemochromatosis
• Neural tube defects
• Non-type 1 diabetes mellitus (questionnaire)
• Osteogenesis imperfecta
• Paediatric myasthenia (case definition) (questionnaire)
• Persistent albuminuria in the paediatric population with type 2 diabetes mellitus (case definition) (questionnaire)
• Prader-Willi syndrome
• Progressive intellectual and neurological deterioration
• Serious adverse events associated with paediatric complementary and alternative medicine (case definition) (questionnaire)
• Severe combined immunodeficiency (case definition) (questionnaire)
• Severe iron-deficiency anemia in infants and young children (case definition) (questionnaire)
• Smith-Lemli-Opitz syndrome
• Subacute sclerosing panencephalitis
• Transfusion-related acute lung injury  (questionnaire)
• Travel-related illnesses in paediatric travellers who visit friends and relatives abroad (case definition) (questionnaire)
• Vitamin D deficiency rickets